A GRANDMOTHER is hoping to raise £17,000 for specialist equipment to help improve the life of her seriously ill grandson.
Nine-month-old Kian Kinner, of Hind Crescent, Erith, suffers from early onset muscular disease with respitory distress, muscular dystrophy, hyptonia, bulbar palsy and cerebral palsy.
It means he will never be able to eat, drink, walk or sit un-aided.
He was recently fitted with a PEG (percutaneous endoscopic gastrostomy), which feeds him through a tube straight into his stomach.
His nan, Jacquie Allen, of Frinsted Road, Erith, has launched a fundraising appeal called A Better Life for Kian.
The 50-year-old said: "At the moment he can only lay flat in his buggy or on the floor or can sit on someone's lap if they are holding him but he doesn't always want to be held.
"With the equipment it will just give him a better quality of life however short it may be."
Mrs Allen is appealing for someone to donate a shed which can then be turned into a physio and sensory room with padded walls, electricity and heating.
Equipment needed for the shed includes a £3,000 Bee chair which would help him sit up, sensory lights costing £675 and a £379 corner chair.
Kian's mum Debbie, 27, has four other children and two of them also suffer from disabilities.
Mrs Allen, who is registered blind, said: "She is trying to help fundraise but obviously she has four school runs every day and it's not possible.
"She has her hands full. It's something I wanted to do."
So far the retired school teacher has raised £200 by putting collection tins in shops and donations from friends and family.
For more information and to contact Mrs Allen, visit abetterlifeforkian.co.uk or email abetterlifeforkian@live.co.uk
Future fundraising events
- November 12: Pub crawl in Bexleyheath.
- December 10: Fun day at Holbourne Hall, in Holbourne Road, Kidbrooke, from 1pm to 4pm. Followed by a Christmas party from 7pm to 11pm with a grotto and auction.
- January 13: Race night at Crofton Albion Sports and Social Club, in Weigall Road, Lee.
- February 11: Valentines ball.
Other equipment needed
Wheelchair/Supporting Buggy £499
Portable wheelchair ramps from £95
Body Massage Sensory Bag £89
Tactile Vobration Sensory Tub £465
Relaxation Sensory Tub £365
UV Sensory Kit £639
H20 projector £249
Sound sensory system £199
Infinity tunnel £675
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